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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myMPNteam Member asked a question 💭
Syracuse, UT

When my hematologist told me that I have ET, he mentioned the importance of managing my cardiovascular risk factors. I'm curious if anyone else sought out a cardiologist to help in this area. I recently saw a video on PatientPower.info (a site that @A myMPNteam Member shared here). It was an interview with a cardiologist who works(ed) with an oncologist to help treat MPN patients. Thanks for any input!

January 29
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myMPNteam

Should people with ET involve a cardiologist in their care?

Your hematologist is right to emphasize cardiovascular risk management. People with essential thrombocythemia have a higher risk of heart and blood vessel problems—about 56.6 percent experience cardiovascular complications.

If you see a cardiologist, make sure Show Full Answer

Should people with ET involve a cardiologist in their care?

Your hematologist is right to emphasize cardiovascular risk management. People with essential thrombocythemia have a higher risk of heart and blood vessel problems—about 56.6 percent experience cardiovascular complications.

If you see a cardiologist, make sure they know about your ET diagnosis and any treatments you're taking. This is important because having heart problems may limit your MPN treatment options. For example, people with heart arrhythmias shouldn't take Agrylin (anagrelide). Managing cardiovascular risk factors

Beyond seeing specialists, you can help reduce your cardiovascular risk through lifestyle changes and managing other conditions:

* Control cholesterol and blood pressure levels
* Manage diabetes if present (people with diabetes have 2-4 times greater risk of heart problems)
* Eat more vegetables, fruits, and whole grains
* Limit saturated fats, trans fats, and salt
* Maintain a healthy weight
* Quit smoking and limit alcohol

For some people, lifestyle changes alone can help. Others may need medication to manage these risk factors effectively.

January 29

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A myMPNteam Member asked a question 💭
Clitheroe, UK