My docs have asked a favor. I've posted on this forum that my doc gave me a very low dose of Ritalin to help with my brain fog, and it worked really well. In addition to the brain fog relief, it also eliminated that horrible bone pain in my legs. They would like to know if anyone else has tried Ritalin (Methylphenidate) and if they had similar results. They are curious if this is an "off label" bonus that other MPN patients may benefit from. I'm not passing any names on to them, just comments… read more
I'm retired. But I can't imagine handling my financial position while suffering from that brain fog! Just an update...still on the Ritalin 5mg....focus is great and still no return of the bone pain. And it's been several months 😁
I agree. I know I seem to feel a little clearer after my phlebotomy. Maybe it’s the sluggishness of the blood? Maybe poor O2 exchange? My background is laboratory science , college educator and administrator, so used to multi-tasking. I am retired now but still consult. It is hard for me to concentrate and focus for more than 1-2 hours, which is unusual for the former me. Just didn’t know if it was age or PV. I would like to know if the Ritalin works for anyone else! Thanks for sharing.
Barbara, I felt the brain fog was the most life changing symptom I was having. I couldn't stand it and I was willing to try anything. A lot of doctors still don't believe it's caused by the MPN. But there are an awful lot of people on this site with MPN AND CONCENTRATION issues. We can't all be crazy.🙂
Sport99...my MPN specialist is actively involved in research. And he said he had never heard of the Ritalin/Bone Pain connection before and made of note of it for future use because he said sometimes "off label" results are quite unexpected and amazing. I'll ask him at my next appt if he has prescribed it for any patients since we talked about it.
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