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A myMPNteam Member asked a question 💭
Wilmington, NC
December 3, 2022
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A myMPNteam Member

Jakifi for PMF diagnosis has worked well to shrink my spleen, but I do know that different folks react differently to it.

December 30, 2022
A myMPNteam Member

weekly interferon injections in my stomach

December 5, 2022
A myMPNteam Member

Hi Carl;
I was on Jakafi for close to 2 years. I got off because I felt it might be causing some brain damage and/or PML. Had a brain MRI but as there was no base to compare the MRI results to, there was no way to know if Jakafi might be causing a problem. While I was on it I did notice organizational confusion and memory issues but what 78 year old man doesn't have some of those.
Thanks for responding. Good luck!!
b

January 30, 2023
A myMPNteam Member

I have PMF. Been on Jakafi 10mg 2x per day for two months. It has been effective in reducing the size of my spleen with almost no side effects.

January 30, 2023
A myMPNteam Member

Thanks Jen; Were the side effects permanent?

January 30, 2023

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