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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myMPNteam Member asked a question 💭
Philadelphia, PA
July 6, 2025
 · 
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A myMPNteam Member

Risk-Reward, you decide with doctors’ input
You are the decision maker

July 19, 2025
A myMPNteam Member

I’ve been on 500mg every three days after initial intake for 5 years. So far so good. I’m 82. 😍

July 6, 2025
A myMPNteam Member

Yes, it is safe. Hydrea has been around for decades and is the usual first line of defense for MPNs like PCV. It's cheap and readily available. I hope I never have to get off of it, because it's worked well for me for the past 10 months, since I was diagnosed.

July 11, 2025
A myMPNteam Member

I know someone who has been on Hu for 19 years and she has been fine albeit at the low dose just one capsule a day. I don't get on with Hu but that's another story. I am reducing my dose and having venesections to take up the slack. Hct at 45 is good for most people...lower than mine is!

July 9, 2025
A myMPNteam Member

I have been on 500 mg of hu for three years with occasional mouth sores and ringing in my ears. Platelets 250 but hemocrit almost 45. May have to start phebotomies as I do not want to take a higher dose of hu.

July 7, 2025

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