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Top 10 Search Results for "mpns what people dont see"

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My Chiro Who’s Also A Functional Med Dr. And Renowned Worldwide For Both Said That SOP And Stem Cells Together Fix Blood Disorders, MPNs.
A myMPNteam Member asked a question 💭

🌟Anyone familiar with this
Says it’s a revolutionary specialized treatment for chronic infections, cancer, blood disorders, vitality, longevity, etc.

Apparently, many ppl do this worldwide for multiple reasons.
Reports say no known reported side effects and safe for all ages.

🌟I’m quoted it’s about $8,000 total, told the stem cells last for your life and they’re from umbilical cord blood with NO DNA from healthy babies and mothers
Said they’re tested to be safe and thankfully non- Covid… read more

A myMPNteam Member

Tatiana, I was only sharing my single person experience. I'll add, I was quite sick when I had Covid.

The trial for immunity measured 52 different 'proteins', antibodies related to sars covib2..And… read more

Is There A Way, A Test, Blood Test, Etc. To Find Out When We Actually Acquired Our MPN, And/or When It Activated Itself?
A myMPNteam Member asked a question 💭

Many of us myself included have said we noticed changes in our bodies and self and symptoms long before we were actually diagnosed.

This bothers me bc I want and need to know, as do we all.

It’s wrong to go by the date we were diagnosed.

Anyone? Thoughts?🤔

A myMPNteam Member

Depending on the type of mutation you have, you can sometimes distinguish between inherited and spontaneous, as well as using VAF % between different testings (it is good to repeat the genetic testing… read more

Effect Intermitted And Longer Fasting On MPN
A myMPNteam Member asked a question 💭

Is there any info about IF and 2/3 days fasting (only tea). NL doesn’t have any info about this. I have to start with med, but want to maybe postpone this.. try to create the best bloodwork possible..Is this possible via fasting! I know about the Mediterranean dieet. Pleas can you make me happy with an advise? Thanks

A myMPNteam Member

I use beetroot in my juices plus I really enjoy beetroot
Here is what is written in an article I am reading about beetroot-

‘Beets are high in antioxidants. Like carrots, they’re also rich
in… read more

Does Anyone Get Phlebotomy As Their Only Treatment. Also Does Anyone Have Issues With Instant Recall For New Laws And Procedures, For Work?
A myMPNteam Member asked a question 💭

I have PV JAK 2 positive. My numbers have not gotten too high. I get pins and needles itching and and I’m tired. At work I have issues with instant recall of new laws and procedures.

A myMPNteam Member

Thank you Tta, this list of symptoms really helps.

Difficulty With Diagnosis
A myMPNteam Member asked a question 💭

I am hoping someone can help. I am 37 years old, and had a bone biopsy a few months ago to see if a vertebral lesion was malignant. It came back negative for a metastasis, but showed myelofibrosis. I was referred to a hem/onc who does not think it's an MPN because of my age. I just did 23 and me DNA testing, and it came back positive for the JAK2 mutation. The hem/onc now wants to do a bone marrow biopsy, but I don't think it's necessary as I have all of the diagnostic criteria for Primary… read more

A myMPNteam Member

I was told by an MPN specialist that they can see everything they need to from a tube of blood. A biopsy confirms what they suspect from labs. Confirming gives them a better idea of what they're… read more

Iwith You On This Bone Pain, How Do You Differentiate If It's From Past Injuries, Arthritis Or Whatever.
A myMPNteam Member asked a question 💭

I've had many injuries throughout my life and have many aches and pains due to past injuries from playing sports, working or whatever. How the heck do I know if pain is from ET or what.

A myMPNteam Member

Tatiana
Your comments resonate with me. After work ups by cardiologist, pulmonologist, various imaging for my heart and lungs, no one can explain my shortness of breath, so I owe it up to the… read more

I Have Left Shoulder And Arm Pain. Sometimes The Pain Is Worse And Then Subsides A Bit. It’s Like An Ache Or Stiffness. Is This Bone Pain?
A myMPNteam Member asked a question 💭
Myeloproliferative Neoplasm Symptoms That May Go Unnoticed Read Article...
A myMPNteam Member

I remembered there is an article on this website, so this is the link for this
https://www.mympnteam.com/resources/pain-and-mp...

I found a clear and simple explanation of why we experience bone… read more

Bone Pain Vs. Regular Aches/pain
A myMPNteam Member asked a question 💭

I have well-managed ET with minor symptoms. I have seen others talk about “bone pain” and I’m not sure exactly what that means. Is it the same as joint pain (knee/wrist/etc.)? Or is it something else - such as sharp pains in long bones like the arm (radius) or thigh (femur)? Can someone please describe it in more detail for me & explain how it was diagnosed, and what your doctor suggested for relief ? ~ Thanks!

A myMPNteam Member

Thank you, Tta, for such great references and information. It’s very helpful! Lydia ~ thank you for your insight as well. I had a strange pain in my upper left arm/shoulder last year that would… read more

Has Anyone Experienced Bone/joint Pain? I Am Still Waiting On My Bone Marrow Biopsy Results But Was Diagnosed With ET + JAK2
A myMPNteam Member asked a question 💭
A myMPNteam Member

I have hip pain... keeps me up at night. No clue if it's arthritis, bursitis, or just joint pain from ET. I'm going to see the osteo doc soon.

How Do We Handle Covid 19? Hibernate At Christmas?
A myMPNteam Member asked a question 💭

I'm worried about my family coming home for Christmas from 4 different states. Should I cancel Christmas? I know they'd be careful, but with PV can I be around other people at all?

A myMPNteam Member

Don’t cancel your plans!! Absolutely not. Keep doing what you’re doing. If a lot of the activity is at your home; use a lot of antibacterial wipes to clean especially refrigerator handles. If you are… read more