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Thank you again
🌟Anyone familiar with this
Says it’s a revolutionary specialized treatment for chronic infections, cancer, blood disorders, vitality, longevity, etc.
Apparently, many ppl do this worldwide for multiple reasons.
Reports say no known reported side effects and safe for all ages.
🌟I’m quoted it’s about $8,000 total, told the stem cells last for your life and they’re from umbilical cord blood with NO DNA from healthy babies and mothers
Said they’re tested to be safe and thankfully non- Covid… read more
Tatiana, I was only sharing my single person experience. I'll add, I was quite sick when I had Covid.
The trial for immunity measured 52 different 'proteins', antibodies related to sars covib2..And… read more
Thank you for the clarification. My Hematologist is not responding to my e-mails. I have to call her office tomorrow to follow up. I don’t understand why they can’t just respond. Usually they respond… read more
I noticed that both my hematologists avoid to use the word cancer when talking to me. When I got the diagnosis, the hematologist downplayed ET so much, despite the fact that I was in fever, pain and had so much brain fog I had to take a nap during the appointment. All these are ET symptoms, but apparently not for my doctor. So I was fine in his eyes. Being young was the reason
This was very detrimental as my partner thought and still thinks that ET is a bit like a headache, nothing scary, and… read more
Hi, Genette. I've gained about 13 lbs. However, I will not go off of Jakafi, as it keeps me going one day at a time.
Here is a comprehensive abstract in a PubMed issue in 2021 that you may find helpful in researching skin cancers especially in MPNs treated with hydroxyurea
https://www.ncbi.nlm.nih.gov/pmc/articles… read more
Is there any info about IF and 2/3 days fasting (only tea). NL doesn’t have any info about this. I have to start with med, but want to maybe postpone this.. try to create the best bloodwork possible..Is this possible via fasting! I know about the Mediterranean dieet. Pleas can you make me happy with an advise? Thanks
I use beetroot in my juices plus I really enjoy beetroot
Here is what is written in an article I am reading about beetroot-
‘Beets are high in antioxidants. Like carrots, they’re also rich
in… read more
Many of us myself included have said we noticed changes in our bodies and self and symptoms long before we were actually diagnosed.
This bothers me bc I want and need to know, as do we all.
It’s wrong to go by the date we were diagnosed.
Anyone? Thoughts?🤔
Depending on the type of mutation you have, you can sometimes distinguish between inherited and spontaneous, as well as using VAF % between different testings (it is good to repeat the genetic testing… read more
I have ET and my mom had Mylodysplastic. I’m thinking about my children’s future
My mother’s brother died of leukemia and one of her sisters has leukemia. I think they both were CLL
Mum is one of 12 kids. My uncle died 15 years ago. My aunty said she had chemo treatment about 7… read more
Dr. Fleischman is looking for families with multiple cases of MPN's and/or an MPN and other cancers. She is hoping to have some family members participate who do not have an MPN - or another type of cancer - and also have family members who have say skin or other cancer but not an MPN. She will send you everything you need to participate. All you have to do to is give the vial to someone doing your next blood draw so you can send them a blood sample in the all postage paid envelope and submit… read more
Me, me, me, like the donkey from Shrek
I am immensely impressed with UCI, her medical center
I have PV JAK 2 positive. My numbers have not gotten too high. I get pins and needles itching and and I’m tired. At work I have issues with instant recall of new laws and procedures.
Thank you Tta, this list of symptoms really helps.
