Probably 6 hours.
You have below a list of symptoms present in MPNs, ET included. Several other studies found that risk score and symptom severity are not necessarily overlapping, meaning that it is possible for… read more
I have hip pain... keeps me up at night. No clue if it's arthritis, bursitis, or just joint pain from ET. I'm going to see the osteo doc soon.
I have Essential Thrombocythemia. Having read much research, posts, and this site, I have read much about the side effects of HU, and proud reports of decrease in platelets after the treatment has decimated them. What I do not hear, and would like to know about is how HU treatment helps (rather than increases) difficult symptoms such as substantial fatigue, energy loss, etc. Thank yoyul.
I haven't taken HU yet, and my platelets are quite high. Staying active is an absolute to maintain energy levels. I mostly hear about quality of life decreasing on these regimens, and appreciate… read more
I have continuous ringing in ear and my doc says it's nothing to do with MPN. But I think it is because of low blood flow in head and neck.
What could be the possible reasons of this ringing in the ears??
I've got big time ringing too, but some of it is from all the loud music over the years. Having ET has definitely made it worse. Over the years I have gotten used to it and I'm able to put it out of… read more
Hi!
Is this something new or the monocytes have been high for a while?
I could find this study:
https://pubmed.ncbi.nlm.nih.gov/20483636/
I hope you hematology can answer your question above.
Many… read more
I lost 30 lb that's how I new somthing was wrong went to reg md .HE did blood panel every thing was high red , white, and plates, hematocrit ,( he sent me to hemothgist ( at the cancer… read more
Hi, I was diagnosed yesterday and have a lot to learn about my condition. Today I’ve woken up with a bloodshot eye the first time in my life, slightly blurry, no pain, crustiness, or weeping. I’ve contacted my doctor and attached photos. It’s a symptom that hasn’t been discussed with me in depth, so if anyone else with this symptom would be able to suggest if it’s urgent, or I should wait for them to get back to me ? Not looking for medical advice just some help with others experiences with this… read more
I get blood shot eyes periodically. Optometrist said it’s dry eye. It may be linked to MPN, but many things can cause it.
I found out I have hypothyroidism, I had a hysterectomy in November. It is not as bad as last year, but continues to happen. Was hoping someone can provide some guideance.
Regarding thyroid: I've been treated for Hashimoto's thyroiditis for 40 years. 100 mcg of Synthroid has kept my thyroid level normal, ever since the correct dosage was found. Also: Does… read more