I found out I have hypothyroidism, I had a hysterectomy in November. It is not as bad as last year, but continues to happen. Was hoping someone can provide some guideance.

Many of us myself included have said we noticed changes in our bodies and self and symptoms long before we were actually diagnosed.

This bothers me bc I want and need to know, as do we all.

It’s wrong to go by the date we were diagnosed.

Anyone? Thoughts?🤔

I have PV JAK 2 positive. My numbers have not gotten too high. I get pins and needles itching and and I’m tired. At work I have issues with instant recall of new laws and procedures.

🌟Anyone familiar with this
Says it’s a revolutionary specialized treatment for chronic infections, cancer, blood disorders, vitality, longevity, etc.

Apparently, many ppl do this worldwide for multiple reasons.
Reports say no known reported side effects and safe for all ages.

🌟I’m quoted it’s about $8,000 total, told the stem cells last for your life and they’re from umbilical cord blood with NO DNA from healthy babies and mothers
Said they’re tested to be safe and thankfully non- Covid… read more

What has least side effects?
I heard Pegasus Interferon but Googled that and it has some bad side effects also.

What about Jakifi? The others?

I’m stressed out as I already have big anxiety about taking meds and Rx.

But I (like all of us) will have to take something at some point.
I’m reading those who wait to treat with Rx generally end up with worsened progressed condition(s).

Seems it’s a game of Russian Rouette whether you take it or not.😰

Is there any info about IF and 2/3 days fasting (only tea). NL doesn’t have any info about this. I have to start with med, but want to maybe postpone this.. try to create the best bloodwork possible..Is this possible via fasting! I know about the Mediterranean dieet. Pleas can you make me happy with an advise? Thanks

How often do I see them? I’ve read some ppl just see an MPN Specialist and stop seeing a Hema.

Should I see both? My Hema doesn’t put forth much effort or time it seems, like a lot of Western Med. Dr’s.

My husband has Jak2 ET. He’s currently sick w/COVID for 2nd time in a month. Took Paxlovid and symptoms got better. Now sick and positive again. Is ET considered an immunocompromised disorder? Seems regular docs don’t know a lot about ET.

I am hoping someone can help. I am 37 years old, and had a bone biopsy a few months ago to see if a vertebral lesion was malignant. It came back negative for a metastasis, but showed myelofibrosis. I was referred to a hem/onc who does not think it's an MPN because of my age. I just did 23 and me DNA testing, and it came back positive for the JAK2 mutation. The hem/onc now wants to do a bone marrow biopsy, but I don't think it's necessary as I have all of the diagnostic criteria for Primary… read more