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Probably 6 hours.
Hello all, let's starts by saying how grateful I am for this group. I enjoy knowing I can go here and ask questions with overwhelming and writing my own family. You all are my MPN family.🥰 So I am 47 and I am a teacher, and the teachers Union President and the head of the World language department and a mom of 2 and I'm getting older. So everyone understands that by itself is stressful. My question is, how do I know if what I'm experiencing is a new symptom or just life, I'm guessing I go with… read more
Dear Janice,
As long as you understand that that is just your opinion and your beliefs, and not what science says, that is fine.
People do function on their beliefs, but it is ethical not to give… read more
You have below a list of symptoms present in MPNs, ET included. Several other studies found that risk score and symptom severity are not necessarily overlapping, meaning that it is possible for… read more
I have Essential Thrombocythemia. Having read much research, posts, and this site, I have read much about the side effects of HU, and proud reports of decrease in platelets after the treatment has decimated them. What I do not hear, and would like to know about is how HU treatment helps (rather than increases) difficult symptoms such as substantial fatigue, energy loss, etc. Thank yoyul.
Ruth,
I was taking a 500mg and 200 mg of HU each day.
Hi!
Is this something new or the monocytes have been high for a while?
I could find this study:
https://pubmed.ncbi.nlm.nih.gov/20483636/
I hope you hematology can answer your question above.
Many… read more
I have continuous ringing in ear and my doc says it's nothing to do with MPN. But I think it is because of low blood flow in head and neck.
What could be the possible reasons of this ringing in the ears??
I've got big time ringing too, but some of it is from all the loud music over the years. Having ET has definitely made it worse. Over the years I have gotten used to it and I'm able to put it out of… read more
I lost 30 lb that's how I new somthing was wrong went to reg md .HE did blood panel every thing was high red , white, and plates, hematocrit ,( he sent me to hemothgist ( at the cancer… read more
One of the problems good people have is "we don't want to get hooked on pain meds." But we need to realize that medication is available to treat the correct symptoms. If physical activity can help… read more
I was diagnosed with ET 15 years ago. My platelets are increasing, and the hydroxyurea is also increasing. I don’t understand why this is happening. The hydroxyurea kept my platelets in the normal… read more
